General update

It’s been awhile, I know. We’ve made some good gains in the past month or so, most notably on the gross motor front. The little guy is gaining confidence on his feet and his gait is improving. Whew. It’s so nice to see him moving around and checking out the world from his standing height. Perhaps he finally got bored of constantly looking at people’s feet, checking out the dog’s dirty paws and eyeing the dust bunnies under the couch.

He does appear to understand more of what I say and can follow simple one-step instructions like “go to your highchair”. Whether or not he has words is up for debate. He seems to say “cah” for car when one drives down the street but the other day he was saying “cah” while poking the dog’s eye. So, yeah, not sure about that one. We definitely have “bubba” for bubbles and we seemingly have “cahcah” for cracker but only with a specific box of crackers. It’s not much but I consider this to be a huge gain.

In other news, the little guy is going to be starting preschool at special needs school in the city. I am so excited for this opportunity! He’ll have 1:1 attention and will receive OT, PT and speech in a customized plan just for him. Awesome! I’m also secretly looking forward to the break. We don’t get any respite and it’s starting to wear on us.

He recently had his GFR test (normal) and his overnight EEG (also normal).

I need to take a moment to complain about the overnight EEG: it is a giant pain in the ass for everyone involved! 30 minutes into the 16 hour test and he managed to rip off 3 leads, poor kid. I can only imagine how uncomfortable the procedure must be for him. This happened at 4pm on a Friday and the technician, about to go off shift for the weekend, was NONE too pleased with us. Perhaps that explains why she then superglued all the other leads in. So much so that now, two weeks later, there are still giant chunks of glue bits in the little guy’s hair. Also, keeping an active two year old in front of a camera for 16 hours while preventing him from ripping off his leads? Not easy.