Mere days after my last post, my son had a seizure. Sigh. It completely blindsided us as he'd gone 1.5 years without one. We were at a gross rib fest, it wasn't a hot day, everything was normal and great up until a few minutes before the seizure.
I knew something was up when he refused a french fry. Fries aren't an every day thing for the kids and are NEVER turned down so my guard was up. What kid of mine would refuse a fry? After the fry refusal, I offered him some bread which he slowly started to munch on as his eyes began doing that funky pre-seizure thing. I knew it was go time so I shouted for my husband who came running. Our son started convulsing and I managed to get him out of the stroller and lie him down under a pinic table for some shade. Gawkers ensued. It lasted around 4 minutes but felt more like 400 hours. Thankfully this time around I didn't melt into a hot mess of freakout though I was tempted to freakout on the gawkers (PSA to all potential gawkers: this is not appropriate behavior.)
Despite the yuck factor of the traveling rib festival* we quickly summoned the event medics who arrived in a flash with an oxygen tank. Whew. After a little oxygen, my son started breathing again, his lips weren't blue anymore, and the color came back to his face. We later got checked out at the hospital and then sent home with instructions to raise his phenobarbital dose to his previous level. If we hadn't been at this place then we wouldn't have received such prompt attention and it would have been a much more serious situation.
So, it doesn't look like we'll be getting him off the meds anytime soon but we are at about 65% of his original dose which is still less than before and now his new holding dose.
* Yes, they travel from place to place! How do they safely store their food? Where does it even come from? And more importantly, WHY?
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